poor pip
dont mind her bloody art-line. try to focus your attention on her adorable e.t. phone home toe.
so, they did take out one of her IVs, which is good at least. she still has her art-line and her central line. they also had to put a feeding tube in her little nose because they have been worried the g-tube is making her aspirate. they were able to place the nasal feeding tube farther down her stomach to try and avoid that.we are still missing her more than ever. i feel like i haven't seen her in forever. i said this in my last post, but even though we are spending so much time with her, it really doesn't feel like she is there.
ummmm, so yeah, there's an update. chin up....saying it 10 times.
Labels: hard stuff, monkey frog, piper jane, suck city
this is what we do on fridays, yay.
i had a short visit with piper today which i hope to make up for the rest of the weekend. i felt so bad leaving her when she wanted me to play with her more, but i had so much to get done. piper is so blasted hyper active. some people might say that hyper is her middle name, but they'd be wrong, it's jane. hyper rhymes with piper so that would be weird. anyway, i really need her to learn how to walk so she can have an energy release. i love her so much, but sister needs to go easy on me for a minute. cutie pie.
looking bored.
piper is tied for first to be my best friend.Labels: monkey frog, piper jane
sometimes piper smiles
big...
huge!!!!
p.s. i hope she forgives me one day for passing down the cheesiest, goofiest smile on the block to her.Labels: monkey frog, piper jane
our first weekend of spring
notice her tiny feet above. oh how I love!
Piper has a hard time concentrating on anything when my blackberry is around. Oh, and that is her in her amazing scoli jacket. It is working miracles!
Crawling around. She never gives up, even though she gets so incredibly twisted in her trach tubes. I'm not sure what her plans were with the charger to her dvd player.
It seems like Piper likes me lately. Maybe I'm not just another person to kick.
When it comes to buying baby shoes, I seem to have little self control.
Labels: monkey frog, piper jane, standing board, therapy
My mama had a dream
*I had a dream that I was taking care of Piper, because she had come home and you kids were going to take a little break; and she started walking around, for the first time. You hadn't left yet, so we were all whooping it up and she was muchly proud of herself.*
What a cute dream! I can picture a Pip's face that screams just how muchly proud of herself she is. It looks like a cross between a mischievous monkey that has stolen something valuable from a beach-goer and me after eating at dunkin donuts....that example might only make sense to me.
Labels: mama sue, monkey frog, piper jane
Piper gets confused
We buy Pippy toys that are good to chew on, I swear. Sometimes she forgets where they are and decides to chew on huge ones like below. She knocked this bad boy over and began to chew away like it was her job!
Such a silly monkey frog
Here you'll find a lovely display of The Pip back-handing Mama. I just want some kisses!
Here she is looking totally innocent.
{notice who is holding her and you'll figure out why}
Labels: Family, monkey frog, piper jane, piper loves her dad
A very pippy weekend
I couldn't post these pictures with the ones taken from our camera because the difference in quality is just too great. Katie and Cameron came to see Piper on Saturday with us. They whipped out their camera for a little photo sesh and voila! Not that it's any of my business, but these two will be great parents some day. Cameron is so doting and Katie is as gentle as they come. They laughed and listened to us tell about Pippy's many quirks and habits. Instead of getting awkward when Piper reached right for my jugular with her sharp claws, Cameron snapped a phote!
Sorry about how many there are, I love them all!!
We are a happy Fam-i-ly*even when we are thrown up on*
This looks like Piper is trying to share her frogs with Katie, but dont let her sweetness fool you, it is only for the picture. Trust me.
My little chupi loves to watch movies on this dvd player. She will pull it closer and closer until it is on top of her face. Sometimes that isn't close enough, that's when she puts her mouth on it.
Here is a bit of Piper's obsession with her bum. She is so curious of what goes on down there. I love this picture so much because you can't see her trach/tubes. She could almost be any little kid, except for the glowing toe and wire coming out of her sock....close enough. I'm allowed to dream.
It only looks like I'm constantly dressing Piper in "off the shoulder" clothing. She can't help having the most narrow shoulders in the world.
Ummm, speaks for itself.
Walking back from the village. Minor puking episode.
Don't let your kids see what goes on in the village, they might fake sick. It is toy central. Every toy you can imagine. (look behind us)
P.S. Just when you think Katie couldn't get any cooler, she likes Gossip Girl...just like me.
I love all of the pictures so much. They are about as acurate as you can get to Piper's true personality (except for the sharing). Labels: Family, friends, jake, monkey frog, piper jane
Who was your valentine?
I know it's a bit belated, but here are some pictures of Piper and her green eyed monster sock monkey valentine. His shirt says "Roar", but she wasn't scared.
snuggling her valentine
To Jake. The hand heart looks much better from the view of the person doing it, but what it lacks in symmetry, it makes up for in size. I have the longest fingers in the world.
Labels: monkey frog, my love for jake, piper jane, valentine
I am thankful for Piper's teeth.
Labels: monkey frog, piper jane
